16 December 2011

Christmas Newsletter 2011

The world of the Hey-C's was transformed late March with the news of my brother David's inoperable liver cancer.  Now finished the initial chemotherapy, the prognosis is much improved with significant reductions in the lesions and good results for liver function and blood condition.  Some niggling side effects, but all-in-all a remarkably positive outcome so far.  I flew to Sydney for David's 61st there and back in the one day.

This summed up how ‘reality bites’ the Heycos in 2011
(Quoted from his general email to family and friends on 20 November 2011).

Welcome to our 2011 Christmas letter, our summing up of the year.  During 2011 we have kept you informed of David’s situation with his bowel and liver cancer.  The main way David is and will continue to be in contact is through his blog and photos.  This Christmas letter will bring those of you not on the internet up to date as it is abut six months since we mailed you a letter.

My 61st birthday, 8 May 2011, Club 55

The family’s wonderful gift to us for Mothers’ Day and David’s birthday was a family photo.  We all went to Bicentennial Park, Glebe Point on Saturday 27 August. This photo, reproduced on canvas, is now hanging proudly in the front hall.

The Hey-Cunninghams under a Morton Bay Fig at Glebe Point

Josh and Kate returned home from 4.5 years in Edinburgh, Scotland, late June. They were intending to return towards the end of 2011 but came earlier due to my situation. They and Alison are living with us for the time being. We find it a wonderful support. Pete returned for a few weeks from Brisbane the day after he was told of my situation.  One week in November all of us were living here at Club 55.
In June we celebrated our daughter's 30th birthday with a degustation dinner at Restaurant Atelier, Glebe.  Friday 16 December we attended her doctorate (PhD) graduation ceremony for her thesis titled ‘The pelvic lymphatic system in endometriosis’. We are all very proud of her.  Our youngest began began his doctorate in March, research-ing the AIDS virus.
Our daughter's PhD graduation, 16 December 2011

For a week in July, some of our family went to Port Willunga, south of Adelaide, South Australia. We stayed in the holiday home of an in-law, a gift on the occasion of our second son's engagement.  He is  currently travelling with his fiancĂ© in the US (including visiting Fredonia relatives), Germany and are having Christmas in London with her immediate family and her English relatives.  Their marriage is in March 2012.
The rest of the family are staying in Coffs Harbour for the week before Christmas.  Barbara and I feel unbelievably blessed by our family.
Additionally, we have been wonderfully supported by you, our wider family and friends. I will always remember the dozens of emails, phone calls and visits received after we advised you of my cancer in March.  Your words of encouragement and prayers continue to enrich my life.  Thank you for the hospitality offered, holidays shared and continued communication.
I have completed my twelve main chemotherapy treatments.  Overall I tolerated the chemotherapy well.  My main lingering reaction has been numbness in my fingers and toes.  This, Dr Lisa Horvath, says will take two to twelve months to reduce or clear.  There are signs it is lessening.
Now on maintenance chemotherapy (Avastin and Xeloda tablets over a three week cycle) there was little reaction at first.  However, the reaction increased over three rounds to a degree where I stopped taking the tablets.  My tiredness and lethargy increased.  The skin on my palms and feet deteriorated.  I saw Dr Lisa last Monday and we agreed I would continue the Avastin, stop the tablets and return to the Fluorouracil bottle.  This means I have returned to a two-week cycle.
Overall I have coped well in my changed circumstances.  Times spent with family and friends, returning to working three months a year, rebuilding the raised garden bed against the neighbour’s fence and enjoying short holidays have been wonderfully helpful.  At the moment, the news of the extent and frequency of the maintenance chemo has thrown me.  I have had to think more about coping and reminding myself how comparatively well off I am compared with many cancer sufferers and most people in the world.  It is good we can think about our situation and choose how to respond.  Several of you have helped me think through my current situation – thank you.
What has Barbara been doing?  Besides some extra support for me, Barbara has continued playing her piano and attending piano lessons, volunteered regularly at the opportunity shop, enjoyed her quilting and ESFNG groups, supported our family life, and travelled with me on mini holidays.
We thank you for your love and support through 2011 and we wish you good health and all the best for 2012.


Love, David & Barbara

25 November 2011

Pristine Blood

I have decided to reduce the frequency of my blog entries to about once a month.  Thank you for those who told me what you would prefer.  I am glad some of you are waiting for this entry.  Here it is!

Monday 21 November I had maintenance chemo round 3.  The Avastin only takes about an hour but I was at the hospital from 12.30 to 5.30.  Had my blood test at 12.30; went to lunch; saw Dr Lisa at 3.00 (appointment 2.30); finally began chemo at 4.15.  Reminded me that I need to be patient.

The good news is that Dr Lisa said my blood is ‘pristine’!  The three indicators of liver function are all normal.  Only one of the oodles of indicators was 3 points above normal and this was a typical side effect of the oral chemo I now take. I am almost a week in to the two weeks of Xeloda tablets.  Then a week off and next chemo round begins 12 December. 

My annoying side effect continues to be the numbness in my fingers and toes.  To keep this in context, I remind myself that I have had relatively few problems compared with most people.  I saw Ingrid on Monday afternoon.  She was having her 40th chemo visit and is currently having chemo at the hospital once a week.  This is a lot of times in her two-year journey.  I notice that I seem a bit more tired with the tablets but, on the other hand, I have resumed my usual work routine.

This month I have facilitated the financial modules of the Company Directors course five times and am scheduled for two more in December.  On Wednesday I was working in Newcastle and took the opportunity to visit a cousin and her family on the Tuesday.  I am on the Gold Coast working in early December and am visiting friends while there.  I am also updating the financial modules of the Company Directors course this and next month.  Feels good to be doing this.  When I am feeling a bit tired I talk to myself to make sure I perform well at the courses.

The weekend of 12 and 13 November I finally finished the side garden – a six months effort.  It is now planted with vegetables.  Barbara and our youngest helped by doing the final earth refilling.  Various vegetable plots are now yielding produce.

Completed side garden, with netting to protect
vegetables from the voracious possums
Side garden looking toward back gate
One of my dad's 60 year old coach
screws used to hold up lattice wire
Reclaimed lawn that has yielded radishes and beans to date
The smallest vegetable patch

I have continued some social activities but at a slower pace.  I have felt like a bit more space – maybe partly due to working again.  This year we decided to permanently reduce our Thanksgiving and concentrate on family.  Thus, yesterday, Thursday night, November 24, Barbara and I celebrated Thanksgiving with family and in-laws.  Tonight we are celebrating Thanksgiving with Barbara’s small group ESFNG.  We appreciated our friends understanding of why we decided to reduce the size of the celebration.

Buttons has now been here almost five weeks.  Last night, for the first time, she slept in the laundry with Muggles.  Today (at least in the morning), I am keeping her in the laundry and outside to help her be more of an outdoor cat.  She has done very well adjusting to lots of people and meeting another cat for the first time.  It was fascinating watching her gradually discover the garden.  She had never been in one before.  First she spent some days tentatively walking on the paving blocks along the side of the house.  After about three days she jumped up into one of the wall gardens and loved it!  She has ‘cat grass’ in a pot.  So, when she first leapt into the garden she started sampling all the plants.  She now realises that only grass is for her.  Then she explored the rest of the backyard making it down to the back gate.  I don’t think she has been beyond that.  She has also discovered the small lizards.  A number have lost their tails and been killed in ‘cat and mouse’ play.  Muggles has been very tolerant but has let Buttons know that he was here before her!

Buttons leaving the laundry
Buttons in the backyard
Muggles remains king of his castle

Today it is only a month to Christmas.  My next writing will be the annual Christmas letter.  See you then.

01 November 2011

Still Alive and Kicking! Reflecting on my Chemo Journey

In March I discovered I had bowel and inoperable liver cancer.  If I took no action I was told I had eight months to live.  So, here I am in my ‘death’ month, November; glad I agreed to the chemotherapy.

Yesterday, Dr Lisa, told me that only one of the three liver function measurements from my blood test was abnormal.  It was at 68, instead of the normal 60.  So, thankfully, my liver is working excellently.

In simple terms, as long as my liver functions well, I will have a healthy life.  I am feeling very well, with reasonable energy and only suffering from chemo side effects.  The main one that continues to bug me is the numbness in my fingers and toes.  This seems to have continued to escalate.  Dr Lisa says to be patient.  It will begin to subside soon, taking between two and twelve months to disappear.

For six months I received the main chemo treatment being three chemos over three days, every two weeks.  My tolerance was good with not many side effects and no serious problems – no trips to emergency like some I have talked with.  Just as well as I had planned my activities during the eleven days between treatments with no expectation that I would have to adjust.  So, imagine my surprise when treatment no. 11 was delayed a week!  It resulted in a three week instead of two week gap between treatments to fit in with my existing bookings.  Overall, I have been able to live pretty normally.

I will always remember the love you showered upon me when I advised by email and letter of my situation.  The dozens of emails, some phone calls and visits showed me how much I and my family are loved.  All your good wishes and prayers added to my optimism and confidence as I began my treatment.  Three of you who have also received chemo for your cancers helped me by ringing and sharing your stories.  I remember thinking and drafting my blog entry to advise how I wanted to be treated when I was finding some concerns expressed to me to great to bear.  Thank you for respecting my wishes.  Your good wishes and prayers are being answered and continue to sustain me.

So far there have been four CT scans.  The second showed a 30% reduction in the cancer in the liver, followed by another 9% in the third and then stable to the fourth.  The measurement is based on the two large lesions.  When we looked over the four sets of scans, the liver looks much clearer now.  It seems most of the little lesions, which looked like a milky cloud, have disappeared.  Dr Lisa says it is reasonable to describe the cancer as dormant.

Now I am in maintenance mode with Avastin chemo once every three weeks plus eight Xeloda® Capecitabine chemo tablets a day for two of the three weeks.  A CT scan will be taken every three months to monitor the cancer.  My hope is that the cancer remains dormant for a long, long, long time!

I am also grateful to my fellow Australians for making my journey much easier on my mind and pocket.  During my journey we have been aware of the debate and angst in the USA over public health benefits.  While Americans think education is a public good, they do not think the same of health.  Australia follows the European model where we regard health as a public good, like education.  I can assure you that this has provided me with enormous comfort.  I remember leaving Dr Lisa’s office with my daughter after my first consultation and stepping on to the footpath and being so aware that my fellow Australians were supporting me.  I understand that each round of the three chemos cost about $10,000.  I only had to pay a few hundred dollars.  This cost does not include the use of the public hospital day facilities.  The label on my Xeloda® tablets states they cost $1,383.92.  I am only charged $34.20.  Under our system, anyone is fully treated and, if unable to bear much financially, it is all for free.  Under our system, Barbara and my financial situation remains intact.

I am reminded of studying Mazlow’s Hierarchy of Needs, represented on a triangle, the needs go from physiological to safety to love/belonging to esteem to self-actualisation.  The lowest two – physiological and safety – are regarded as hygiene factors.  This means that humans need these in place in order to feel basically OK.  The three higher needs are motivators but people are unlikely to be motivated by these if the hygiene factors are not in place.  I see public goods such as education and health as part of the safety level.  It is interesting to note that the Nordic countries always rate highly on a ‘happiness’ index.  They are among highest taxed countries in the world, most generous in overseas aid on a per capita basis and big providers of the public good to all their citizens.  I think I would not be as happy as I am or feeling so well looked after, if Australia did not have a strong public health system.

Which brings me to the Sydney Cancer Centre at Royal Prince Alfred Hospital.  The care, service and attention I have received there over the last seven months has been excellent.  As Alison said to me at the beginning: it might be a world standard facility but they are stretched.  This is true.  I have seen the nurses very tired at the end of a long day.  But, patients are always well looked after by all staff.  We patients just need to be patient!

How am I feeling at the moment?  Frustrated by the continuing numbness in my fingers and toes!  Waiting for it to start to subside.  On another angle, it is remarkable to have a sense of numbness and feeling at the same time.  I have had some funny instances resulting from dropping items due to the numbness.  Two more serious ones occurred since my previous blog entries.  I was about three rungs up the stepladder that was leaning against the brick wall between us and the neighbours.  I was chipping cement rendering from the top of the wall.  The phone rang.  I scurried down.  Next thing I knew, I was sitting on my bottom on the pavers.  I have no recollection of falling or landing!  Shortly after I was holding a hand held sledge hammer.  Next thing, it was on the ground beside but not on my right foot!  Again, I had no sensation of the hammer slipping through my fingers.  Needless to say, I am taking more care now.  I have to use my eyes much more.  I cannot assume my hands and feet will automatically do things.

People are interested in my feelings.  Much of my blog is like a diary.  When I share the activities I am undertaking, these reflect my feelings.  These activities and places help provide a sense of happiness and meaning.  I have enjoyed seeing many friends and family members in many places over the last seven months.  I am so aware that the people in our lives are such an integral part to the meaning and enjoyment of life.

Where better to finish than to thank my close family for their love and support.  The news was a shock to us all, requiring time for adjustment.  I think now that things have settled down and we are ‘normal’.  My family has made it very clear how much they love me and want to be with me.  We have seen my brother three times this year.  Our eldest and his wife came home from Edinburgh and, with our daughter, are living with us permanently at the moment.

So in a time of challenge I feel very blessed, very well and well looked after.

The Mornington Peninsula

Barbara and I enjoyed a week’s holiday at the Nepean Country Club, Boneo, on the Mornington Peninsula in the last week in October.  Due to the good winter rains the peninsula countryside look like the rolling hills of Britain.

We drove down on Saturday 22 October, leaving at 5 am and arriving at 5 pm with breakfast at McDonalds Gundagai and lunch at a cafĂ© in Seymour.  Dual carriageway is only missing at Tarcutta, Holbrook and a small town further south.  All but the Holbrook bypass should be open before Christmas.  In Economics class, during my final year at High School, in 1968, our teacher (who loved Mao) told us that if a dual carriageway was completed between Sydney and Melbourne, billions of health costs arising from motor accidents would be saved.  Now, 43 years later, this is nearly achieved.  Australia has been slow developing some important infrastructure items!

London Bridge Beach
Sunday we enjoyed the farmers’ markets at Red Hill buying some lovely products for the week’s feasting.  Later we drove along viewing some ocean beaches to Portsea, last town on the peninsula.  We drove back through Sorrento along Port Phillip Bay.  Monday was rainy and we hibernated, reading our books.  Tuesday we went on a resort run wine tasting excursion to nearby Cups Vineyard.  Later we searched for and found some delectable local cheeses and then meandered along the coastline of Western Port.  Wednesday was another resort excursion to the street markets at Mornington.  We drove via the beautiful Arthur’s Peak (named after the one in Edinburgh) and returned along the Port Phillip Bay picturesque shoreline.  Thursday we returned to Arthur’s Peak and did a circuit walk followed by a visit to historic Heronswood.  Friday we visited more beaches along the Bass Strait coast.  See our holiday photos at http://gallery.me.com/davidheyc#100152.

Point Leo
Flinders West Head
Cape Schanck
Arthurs Seat view to peninsula
Heronswood
St Andrews Beach

Saturday we drove to Melbourne to shop and visit friends.  We enjoyed dinner at friends Chris and Alison, their children and other friends Fiona and Angus.  We had stimulating conversation discussing world issues.  Sunday we drove home.

Other recent activities include dinner at the Rice Paper with a cousin and husband, an exhilarating Lennon McCartney Songbook concert, working on the raised garden, lunch with a long time professional colleague, facilitating for Company Directors and meeting with a new financial planner.

Oh ….. And we returned to everyone living at Club 55 – our children, one wife plus us – seven!  So, here we are in four bedrooms plus the second lounge room, with one bathroom and an extra toilet.  Just as well we all get along so well!

And there is more!  On the first Sunday we were away, Buttons moved in.  Buttons is a three year old, white and black cat; smaller and thinner than Muggles; always lived inside and is a scaredy cat.  Buttons is warming up to us and seems to bond with women faster.  Her previous owner could not have a cat in her new accommodation and, so, we volunteered to have her.  Today she is wandering around the house more, hissing at Muggles when they were in the same room (Muggles couldn’t care less) and letting me stroke her a few times.

14 October 2011

Maintenance Chemo Round 1

Tuesday morning, 11 October I had another CT scan.  Tuesday night we toasted our eldest and his wife with champagne on the occasion of their fifth wedding anniversary.

Wednesday I was at the hospital at 8.30 am for my blood test.  Then I went and picked up my CT scan and provided it to reception for Dr Lisa.  Spent time in the cafĂ© having coffee and reading my spy book.  Then back to the waiting room and after 11.00 saw Dr Nick Coupe, the registrar.  He was very happy with the CT scan results.  The main lesions being monitored in the liver had not changed since last time, indicating the cancer has stabilised.  So, overall I have had a 37% reduction and now it is a matter of the cancer remaining ‘dormant’.  When Dr Lisa Horvath joined us, she thought ‘dormant’ was an appropriate description.

She decided that I should move to maintenance chemotherapy, which means only the Avastin at the hospital and Xeloda Capecitabine tablets – four each morning and each night for two weeks in each cycle of three weeks.  So, I have one week of no chemo.  When holidaying for longer periods, I will not have any chemo.  Every three months will be a CT scan to see what the cancer is doing.  If, or when, there is an increase it will be zapped with regular chemo treatment and then back to maintenance mode.  This will continue until it is decided there is no further benefit.  Nick was optimistic that my prognosis is good.  I am with him!  The tablets are a similar chemo to the Fluorouracil in the bottle.  This chemo can result in side effects of peeling palms and soles, and diarrhoea, which I am hoping will not occur.

My main hassle has been increased intensity of one of the side effects.  Back at the last chemo treatment my side effects were some queasiness, morning light nose bleeding (and again this morning, from the Avastin), bit of discomfort in the mouth and numbness in the fingers and toes.  All but the numbness disappeared quickly.  I have sensation of both numbness and feeling.  As Dr Lisa warned, the numbness has increased.  The numbness has moved further down the fingers and spread from my toes to the balls of my feet.  She thinks it now is at its maximum and will reduce.  The reduction is likely to take two months, even a year and might not completely disappear.  Meanwhile, I dropped my camera on concrete in Penang but it is still working.  A sandwich slipped through my fingers at high tea.  I am struggling to do up my button on the left cuff of long sleeved shirts – often need to sit and look hard – all buttons are more awkward.  Lisa said my depth perception has been affected.  So, I cannot touch type so well – often hitting wrong keys, especially with my right hand.  Please forgive any mistakes remaining in this and the previous blog update.  Hopefully, next time I report, there will be improvement.

So, I am feeling a little sorry for myself, as the numbness is a nuisance.  Yesterday, my brother reminded me of the suffering I have seen in others and how minimal my hassles have been.  He is right.  Yesterday, I sat next to a 16 year old young Asian woman having chemo.  Her stoic mother accompanied her and you could see the love and sadness in her eyes as she encouraged her daughter by her presence.

Today, I am finalising the blog entries after having met with our new financial planner, while Barbara is volunteering at the Petersham opportunity shop.  Tonight ESFNG are coming here for dinner.  I am listening to Cher’s Greatest Hits.  I am thinking of reducing the size and frequency of my blog entries.  Feel free to let me know what you think.

At Home and Abroad

The three weeks between Chemo Round 12 and Maintenance Chemo Round 1 were spent at home and abroad in Singapore and Malaysia.

I enjoyed facilitating the financial modules of the Company Directors Course in Sydney on Friday 23 September.  I ‘lost’ my photo album book at the course on Sunday I attended with Phil and Katharine.  I found it hard to take and went home at lunchtime.  However, after a lunch I started again on the Apple Macintosh and had success.  I applied techniques learned in the morning and created a 56 page Lake Eyre album.  I still have some finishing touches before I arrange for printing.

Monday 26 and Tuesday 27 September I worked on the wall garden.  The earth is now all sifted, the bricks cleaned and a portion of the wall rebuilt.  While I was overseas, one of my sons wheel-barrowed three loads of bricks from under the front of the house to the back and Barbara cleaned any that were dirty.  So, now it is a matter of finishing the wall building and filling the garden.


Wednesday night we attended the Mary Poppins stage show at the Capitol Theatre.  We enjoyed tapas at a Spanish Restaurant and the show was absolutely fabulous.  It is the best musical I have attended – the staging, the scenery and scenery changes, singing, dancing and acting were superb.  The story is positive and uplifting and as I was feeling teary with happiness I thought of the value of applying the positive thought in my own life.  At the end Mary Poppins flies off from the stage over the audience and disappears into the high ceiling of the ornate Art Deco theatre.  The audience was enrapt by the performance.  Thursday I visited with neighbours Joy and Graeme.

Friday 30 September I flew Qantas to Singapore for my eleven days abroad.  Saturday I caught up with friends Lay Geok and Danny for morning tea, Lee Hiah for lunch, and Yvonne, Alita and Vissia for dinner.  Morning tea was on Keppel Island at a cafĂ©.  Lunch was Japanese, at Akashi Restaurant, Vivo City.  Dinner was at the White Rabbit, near Dempsey Hill, which is an interesting area of antique shops and restaurants in the old British Army Base.  Sunday I facilitated the financial modules of the International Company Directors at the Sentosa Resort, Sentosa Island and flew in the early evening to Kuala Lumpur.

Monday 3 to Wednesday 5 October I facilitated my 3 Day MBA in Finance (a fancy title for Financial Management for Non-Financial Managers) at the JW Marriott Hotel.  Both seminars were well received and I coped well with four days facilitation in a row, including changing countries.  On the Monday and Tuesday evenings I went to bed around 8 pm to make sure I had enough sleep.

Wednesday afternoon I caught a taxi to Simon and Diana’s place.  Simon was there to greet me.  We headed for a resort hotel where Diana and their children were enjoying time with their friends from Sydney.  We enjoyed an adults only drink time followed by a Chinese dinner in a nearby popular restaurant.

One of my enjoyments of Malaysia is teh tarik (pulled tea) and roti.  Simon and Diana indulged my passion several times.  There is a 24 hour restaurant about 2 minutes walk from their home.  I had a couple of breakfasts there and also enjoyed teh tarik in other places during my four-day stay.

Thursday afternoon we drove to the state and island of Penang where we stayed at The Blue Mansion, a fantastic UNESCO endorsed boutique hotel in the middle of the Georgetown World Heritage site.  Diana could not have chosen better!  This Chinese mansion was built in 1880 by Cheong Fatt Tze, a successful businessman and Mandarin.  It was one of several mansions he built in Singapore, Indonesia, Hong Kong and two in mainland China.  In these homes he housed his eight wives.  Over the years three of his wives lived in the Penang mansion including his favourite seventh wife, 50 years his junior and father of his last son, who inherited and lost the mansion.  From being neglected, the mansion was bought by concerned locals and faithfully restored during the 1990s.  It helped galvanise interest in preserving the colonial heritage of Georgetown.

Friday we did a self-guided walking tour, which, along with the Blue Mansion is featured in my Malaysian photos at http://gallery.me.com/davidheyc#100147.  Though the weather was mild during my trip, when the sun was out, it was hot.  On two stops, we enjoyed refreshing drinks.  In the early afternoon we were enthralled by the Blue Mansion house tour conducted by the hotel manager.  In the late afternoon we enjoyed a delicious English high tea at the historic Eastern and Oriental Hotel.

I did not expect that the country in which I have enjoyed two English high teas would be Malaysia – Georgetown and at the Carcosa Seri Negara Hotel, Kuala Lumpur last year!

The other places I have enjoyed it are with William at the Epcot Centre, Disneyworld, Orlando, Florida (1996); with my brother and Barbara at the Victoria Falls Hotel, Victoria Falls, Zimbabwe (2006); and with Bonnie and Brian and Barbara at the Empress Hotel, Victoria, Vancouver Island, British Columbia (2008).  Maybe some day I should try it in England!


Saturday Diana and I walked a couple of minutes from the hotel to the oldest European graveyard in Georgetown.  We passed through the protestant section into the smaller Catholic section where two of Diana’s European relatives are buried.  The graveyard has supposedly been restored but we could not find their grave.  These people were the family into which Diana’s grandmother and mother were adopted.  Then we drove around Penang Island, something that neither Simon nor Diana had done.  They have been to Penang many times and Diana lived there during some of her childhood.  There is no road fully around the coast.  You can go so far and then have to cross over the hills to another part of the coast.  The roads were winding due to the coastline and the hills.  We visited a waterfall, had lunch of Assam laksa at Eric Kee’s weekend restaurant and inspected a nutmeg farm run by Chang Kun Mim.  These events proved most enjoyable and worthwhile.  We saw old style wooden homes with louver windows and Malay style fishing villages.  This area of the island was referred to as the ‘backside of the island’ and was more interesting being away from the tourist resorts.

The rest areas on the expressway were also interesting with amazing numbers of people and extensive facilities at some.  The last one we stopped at was like a shopping mall, featuring local food products and other shops.

Sunday was a slower day.  I went early to the airport with Diana and Simon, who were flying to a wedding elsewhere in Malaysia.  I used the time to read – have read several really good books lately: Forgiving the Dead Man Walking, Stranger in the Forest  and The Boy Who Harnessed the Wind plus two enjoyable spy story books.  Sunday night was a great time at dinner with Ek Khuan (friend from 1970s Arthur Young days) at the Crowne Plaza, Changi Airport, Singapore.  Monday I flew home on a day flight.

22 September 2011

Chemo Round 12

Monday 19 to Wednesday 21 September was chemotherapy round 12.  I arrived at the hospital just after 7.30 am for my blood test.  After coffee in the cafĂ©, I saw Dr Lisa just after 9 am.  Good news – my blood was working fine and I was fighting fit for chemo!  I mentioned that numbness in my fingers and toes had seemed to increase and that I sometimes now felt unsteady when standing – feeling as if I am swaying.

I could tell that Lisa was concerned about the swaying.  She decided to stop my second chemotherapy, which is the culprit for causing the numbness and most of my queasiness.  This means that my treatment at the hospital is reduced by about 2.5 hours.  Lisa said the numbness would increase for about another four weeks before receding.  I have noticed that my handwriting is messier than normal.

The three chemotherapies I have been receiving are:




So for chemo round 12 and the proposed round 13 in three weeks I am receiving Avastin and Fluorouracil.  On Tuesday October 11, I am having a CT scan.  I will see Dr Lisa on Wednesday 12 and discuss the results.  We are expecting that after chemo round 13 I will move to maintenance chemo.  The maintenance chemo will consist of Avastin administered once every three weeks at the hospital with two weeks in between being chemo in tablet form – one in the morning and one in the evening.  I mentioned that some women patients told me they had severe reactions.  Lisa said that due to metabolism differences, men usually do not have much reaction.  Hope this is the case for me.

‘Why are you suggesting maintenance chemo?’ I asked Lisa.  The aim is to prolong the time before the cancer starts to grow again, ie extend life.  Lisa said there is no research that shows whether this works or not.  She tends to prescribe the treatment for patients who have handled the chemo well in their initial treatment and thinks it is the best option.

I began my reduced chemo treatment before midday and was home after 1 pm, when I had some lunch.  With the bottle attached earlier, it was completely empty by the time I returned to the hospital for ‘de-accessing’ at 3 pm on Wednesday.

My diversion therapy during this round has been Monday night dinner out at Tommy’s Beer Cafe on Glebe Point Road with family; Tuesday lunch with Cameron at Canterbury Hurlstone Park RSL Club; and Thursday breakfast with Barbara, Noel and Lynne Jones at Crumb Italian Kitchen, Shop 5/114 Majors Bay Road, Concord.  Tomorrow I am facilitating the financial modules of the Company Directors Course in the city.

An additional hassle during this chemo round 12 is that I messed up my computer.  I downloaded some software for a course I am attending with Katharine and Phil on Sunday.  For whatever reason it resulted in duplicating the applications folder.  So, I proceeded to delete the ‘duplicate’ icons and actually deleted the applications.  Well, I stopped it before it finished but software such as Office 2008 was gone.  Well, after some attempts with limited success myself, my son helped me today.  Thankfully, I have a hard disk attached to the computer that automatically backs up – using the ‘time machine’ software in the iMac.  By installing Office 2008 from the original disk and then reinstalling from the Office version on the 14 September backup – all back to normal – phew!  I cannot explain why this worked but I am glad it did.

At the moment one son's partner is off to the USA for two months, our daughter is returning from the UK.  Life continues and we will soon have six of us living here at Club 55 for two months.  Like the Australian TV program, we are Packed to the Rafters, and loving it!

21 September 2011

Odds and Sods

This entry is an extra catch up before chemo round 12.

My Armidale visit was very enjoyable: the two day Financial Analysis for Better Commercial Lending seminar went well at Community Mutual Group.  I enjoyed visiting with Henry and Noelene, friends from Glebe Christian Youth Club days in the early 1970s, and catching up with my second cousin Joanne and her husband Colin.

Back home on Wednesday 14 February, I felt pumped up from Armidale and looking forward to Lake Eyre.  I had breakfast out at my favourite Pain de Sucre CafĂ© and did the Sudoku and most of the crosswords in the Daily Telegraph; caught up on administration matters; and then sifted more soil in the backyard gardening effort.  Finally I packed my bags – luggage 5 kg and cabin 2 kg – and tumbled into bed.

While we were away, our eldest and his wife found time to work in the backyard.  So, when we returned, they had removed soil from around the palm tree stump and hacked through some of the hundreds of roots.  They had planted some cabbages and dug up some of the lawn to be used for vegetable growing.  We have begun an extensive vegetable and herb venture.
 

Lake Eyre Flying Holiday

Starting Off

At 6.40 am, Thursday 15 September when the minibus arrived at Club 55, we began our four day Lake Eyre flying holiday.  We picked up several fellow travellers.  We thirteen tourists were allocated to one of the two ten-seater planes piloted by Ross Anderson (ours) and Brenton Pugh.  About 8.30 am we boarded the plane and were soon flying over the Blue Mountains, Wallerawang electricity coal fired generators, farming country between Mudgee and Bathurst, then flying near Wellington and along the main highway into Dubbo.  In 1 hour 10 minutes we alighted at Dubbo to refuel and picked up the three remaining passengers, who had driven from Tamworth.
Blue Mountains
Refuelling at Dubbo
On the flight between Dubbo and Cobar, our next refuelling stop, the countryside changed from farming to dry lands.  The dryness of the countryside continued to Broken Hill.  However, the Darling provided a ribbon of water and there were a number of lakes resulting from the abundant rains in 2010 and early 2011.  We flew low over the many Menindee Lakes, which have been filled over the last three seasons following years of drought and little water in the lakes.

 Broken Hill

From lunch on Thursday to after lunch on Friday we spent looking around Broken Hill and Silverton.  Broken Hill is a thriving small city in the desert with a large artist population, art galleries, cafĂ©s and historic buildings.  Silverton is almost a ghost town and was where silver was discovered before the world’s largest silver load found in Broken Hill.  Our tour guide and bus driver Chris is among the best guides I have enjoyed anywhere in the world.  After a mediocre lunch at the Sturt Club we drove around some of the Broken Hill sights including its main street, Argent Street, with its many historic, lovely, stone buildings.  Then, we travelled to the Desert Park, where we saw Sturt Desert Peas in bloom and wandered around the Sculpture Park.

Back in Broken Hill we visited the Pro Hart Gallery and the Miners Memorial on top of the old BHP slag heap.  Chris told us the name ‘Broken Hill’ comes from a hill full of broken rocks and an ore body that existed in what is now the downtown area.  It was dug away in the mining frenzy that took place.  Charles Rasp, the boundary rider who discovered the silver, lead and zinc, together with six others made claims and formed the Broken Hill Proprietary company.  Today BHP Billiton is the world’s largest mining company, however, it left Broken Hill about sixty years ago.  After a westernised Chinese dinner at the Comfort Inn Crystal Motel, we went to bed for a much needed sleep.
David on big seat at memorial
Post Office, old town hall, police station

Thursday late afternoon and early Friday morning I wandered around the downtown area and took some photos.  After a good breakfast, we boarded the bus and Chris showed us more of Broken Hill.  One of the things he pointed out was the local golf club, which has green fairways and greens thanks to investing $6 million in running a pipe about 10 kilometres taking water extracted from the sewerage plant.  Previously this water was simply pumped into the desert.  We saw lots of workers cottages and older style housing.  Land is cheap and, therefore, housing prices are low to moderate.  The population has reduced from over 35,000 in the heyday of the 1950s to around 20,000 from the 1970s.

I like Broken Hill.  Barbara saw a pretty stone house for sale when on her morning walk.  I suggested we could see it together and maybe buy it as a holiday home.  She could not remember where she saw it and thought it was a scatterbrain idea anyway.  I felt like I would like to do something radical – radical for me, anyway – in my remaining years.  Barbara would rather me simplify our lives, not add more complexity.  I think she demonstrated the wisdom on this occasion!

Silverton

In October 2008, we visited Broken Hill and Silverton for a day when on our trip down the Darling River with Lesley and Steve Prince.  I had wondered if I would gain much from visiting again.  But, like in Broken Hill, Chris provided information and took us to more places than we saw in 2008.

Driving the engine
We visited Penrose Park on the eastern side of Silverton.  This is a recreation area established for Broken Hill residents.  They used to travel in open box carriages on the rail line between the two towns.  I found the most interesting thing was the old steam engine.  There were sheep, goats and birds in old-fashioned cages in an animal exhibit that I did not find attractive.

Next we went to Mundi Mundi Lookout, five kilometres west of town.  The lookout provides a panoramic view to the west.  The view was of green low vegetation rather than the normal red barren soils.  The rain in recent time has resulted in unusually green scenery.  The Mundi Mundi plains is where the crash scene was filmed in Mad Max 2.

Finally, we toured what remains of the town.  In the late 1880s many homes were dragged on wooden carts into Broken Hill, the new, more successful mining centre.  However, cute stone buildings remain.  I spent most of our hour of free time looking at the incredible, well-arranged exhibits in the old gaol (jail).  Lots of old photos of buildings and families; mining equipment; old washing machines, old irons, old fridges and other cooling devices – a treasure trove of history – donated by many and maintained by volunteers.


We enjoyed a lovely lunch at The Silverton Cafe.  Here, too, were collections of old bottles, dolls, teapots and odds and ends.  We returned to Broken Hill for an hour of free time before boarding the planes for the flight to Marree.  Most people wandered around, but I sat around near the old post office, watching the passers-by and enjoying two cappuccinos.

Flying over Lake Frome and the northern Flinders Ranges



We flew north-west from Broken Hill to Marree (which is south-east of Lake Eyre) over Lake Frome and the northern Flinders Ranges.  What a wonderful flight!  We flew low over Lake Frome, which is a large salt lake that still held pockets of water.  Flying low over the northern Flinders Ranges brought back memories of visiting this area with my brother in March 2010.  We drove there from Wilpena Pound and stayed a couple of nights at Arkaroola.  We enjoyed the Ridgetop Tour that takes you to Sillers Lookout to view Lake Frome and we also flew around the ranges.  So, it was wonderful to approach in the opposite direction from the east over the lake to the mountains.

Leaving the Flinders Ranges, the countryside became more barren and flat.  I saw the tiny settlement of Marree from the co-pilot’s seat and enjoyed the descent and landing on the small airstrip.  We disembarked and boarded the school bus for the short trip into town and to our accommodation.

Marree

Marree is an outback settlement of 87 people on the Oodnadatta Track.  Once it was a major place on the old Ghan Railway.  Cattle were driven down the Birdsville Track from Queensland, loaded on trains at Marree for shipment to Port Augusta and Adelaide.  Once 30 trains a week left Marree.  Today there is no railway as a new standard gauge railway was built, as was the main road, further to the west.

Marree is at the southern edge of the huge Artesian Basin that stretches from Queensland through NSW and the Northern Territory into South Australia.  The rim of the Basin follows to the north-west of Marree west of Lake Eyre, providing springs of fresh water along the way.  This is why the early settlers travelled that way – there was fresh water – called the Oodnadatta Track.  Further west there was no water and little water on the Birdsville track.

Barbara and I checked out our accommodation, which was in a new but incomplete portable style building.  We had two TVs plugged in – one on a chest of drawers and one on the floor.  There was no mirror or hanging space for towels or clothing.  The screen door could not be locked.  There was a circle marked on the ceiling over the shower for a non-existent exhaust fan.  There was a power point high on the wall for a non-existent air conditioner.  Thankfully, the evenings were cool and the temperature in the room was pleasant for sleeping under a doona.

Barbara and I wandered around looking at the old replica mosque, remains of the railway and station and on to the pub.  There we enjoyed the South Australian West End beer and were soon joined by others from our group.  We spent a pleasant hour or so chatting and then headed for the Roadhouse (next to our accommodation) for dinner.

A vegetarian would struggle in the outback where meat is king!  There was one vegetarian offering on the menu.  The first night I enjoyed lamb and the second, roast pork.  For drinks, you wandered around to the fridge or poured the wine from a cask into a glass, went to the cash register and paid.  I think the waitresses had to be German to work there.  I met four of them.  Their English was excellent (one said she learnt ‘Oxford English’ at school) and they enjoyed being there.  In the morning you could have a cooked breakfast but there was no choice of style.  You got bacon (so much I think they had and killed their own pigs), two eggs, half a tomato, mushrooms and toast – only white bread.  The second day Barbara requested no bacon and they obliged.  All the meals were hearty and provided quickly.

Lake Eyre by Road

Saturday we travelled to Lake Eyre South by school bus.  Reg, a local knowledgeable aboriginal, was our guide.  Our group was joined by six others which meant we were too many to fit in one bus.  Neville was the second driver.  He drove our bus on the way up and Reg on the way back.  Reg provided interesting commentary when he was with us.  He talked of the rail and cattle history.  Barbara mentioned she hoped he would talk more of the aboriginal story.

On the way up we stopped at one of the old Ghan workers accommodation.  Every ten miles, workers accommodation was provided for a team of seven – five fettlers, the gang boss and the cook.  There were about thirty between Marree and the next settlement of William Creek.  Each group of workers was responsible for ten miles of track, five miles in each direction.  Many of the workers were migrants from Europe who were shell-shocked when they found themselves in such isolated, arid and barren circumstances.  Water was trucked by rail to each group.

Next stop was by the dog fence.  At 5400 kilometres (3,355 miles), it is the longest manmade structure in the world.  It is designed to keep the dingoes on the northern side of the fence.

Then we visited a Mutonia Sculpture Park created by a mechanic, turned artist, Robin Cooke from Melbourne.  The first sculpture consisted of two old airplanes, side-by-side, noses in the ground.  We alighted from the bus and walked through the various sculptures of old pieces of metal welded together and arrived at an old homestead for a barbeque lunch of chops and sausages and various fresh salads provided by Reg’s family.

The Glebites - David,
Barbara, Baiba & Katharine
After a satisfying lunch we travelled further along the Oodnadatta Track and then turned right onto a private road that few people, such as Reg, are able to use.  This brought us to Lake Eyre South along the southern shore.  It was spectacular driving along the shoreline seeing lots of water and salt.  Lake Eyre consists of the south lake, filled by local watercourses and the north lake filled by overflow from flooding in western Queensland.  The water is retracting in both lakes but is further retracted in the south lake.  The north lake had filled for the first time in many years due to three seasons of floods in western Queensland – three years of flooding is the first time in white man’s time in Australia this has occurred.

The buses stopped and about half of us wandered along the lakeshore to meet the others at a point with a rock shelf.  The rock shelf made it possible to enter the water without sinking into the mud under the salt crust.  Three of us donned our swimming costumes and entered the water.  It was very warm within a couple of metres of the shore and still pleasant further out.  The lakes are shallow and are about 20 metres below sea level and are ten times saltier than the Dead Sea.  So, when I lay on my back to float, as long as I stretched my legs, I could not sink.  My feet floated above the surface and I could comfortably hold my head up.  It was like lying in a mouldable lounge chair.  I turned over to try some breaststroke but my feet lifted up out of the water and, with the shallowness, it was too much bother to try kicking my legs.

Around the lake there is much evidence of the old inland sea bed.  Such sections are very stony and barren with little or stunted growth.  We were amazed as Reg drove slowly through this section, avoiding running over tiny lizards.  He’d announce ‘there’s one’ and I would see nothing.  After a couple of such calls I too saw the white-light brown lizards.  I think this is an example of aboriginal affinity with their land.  They just see so much, so easily!

Our main stop on the way back was to explore the land on the rim of the Artesian Basin.  Within 50 metres of the road, Reg took us to a spot where he removed carefully placed stones and revealed fresh water lying just below the surface and invited us to drink.  He pointed out another uncovered pool of water nearby, used by the animals and suggested we not drink that.  Around about, water that had bubbled out of the Artesian Basin was lying in sizeable pools in a creek bed.  It was fascinating to see this fresh water.  However, Roxby Downs Mine, further to the west, pumps about 50 megalitres a day from the Artesian Basin.  We were reminded that for we humans, water and food are the most important things on earth.  There is much concern that too much water is being extracted from the Basin and it is being permanently depleted.  It would be tragic if we Australians destroyed this wonderful resource due to our greed to mine, farm and live in the desert.

Lake Eyre by Air

8.30 am, Sunday 18 September, we embarked on our 1.5 hour flight over Lake Eyre.  We were all filled with anticipation of something special – and it was – vast, arid and barren.  Again, I had the enjoyment and privilege of being in the co-pilot seat.

It was much quicker flying to Lake Eyre South than driving!  We flew over Lake Eyre South further east of where we drove.  The eastern side of the lake was dry and, so, we were flying over a vast extent of salt covered surface.  You could see the water on the western side and I think I identified where we drove to yesterday.  Lake Eyre South is 64 km (40 miles) long and 24 km (15 miles) wide and is fed by local drainage, mainly from the west.  Seventy-five millimetres (3 inches) of rain falling in the hills to the west will result in water flowing in to the lake.

The stretch between the South and North lakes was very barren with little and only low growth.  Thus, though there might be a lot of water in the vast lakes, the area is arid and barren.  The drainage system into Lake Eyre takes up about a sixth of the Australian continent and consists of western Queensland, a large slice of the Northern Territory, a small part of western NSW and a large area of South Australia.

Lake Eyre North is truly vast being 144 km (89 miles) long and 77 km (48 miles) wide.  Though there were large areas of salt around the shore, there was still a lot of water that stretched to the horizon in the north.  We flew far enough north over the lake to visit an island that had some pelicans that looked like small dots as we flew over them.  Bird life is on the water systems that lead into the lake rather than at the lake, as there is more food there for them.  The lake colour was mainly blue but varied to a purple in a couple of areas.  We flew further east over a minor river inflow on which there was a remote homestead and then back over the eastern side of the south lake to Marree.

If you want to read more about Lake Eyre, you can try the following websites:
•     Wikipedia Lake_Eyre
•     Lake Eyre Basin

Flying Home

Tibouburra Family Hotel
Lunch was scheduled in Tibouburra, north western NSW, which was also scheduled for refuelling.  However, there was no fuel in Tibouburra.  The pilots arranged an extra stop in White Cliffs (opal mining), then Dubbo and on to Bankstown.

From Marree we flew over varied low lying countryside including salt lakes, fresh water lakes and rows of vegetated sand dunes.  At Tibouburra our transport consisted of three vehicles, including two SES (State Emergency Services) vehicles working in relays to ferry the nineteen of us into town and back.  Tibouburra is a small and attractive town that Barbara and I are interested in visiting by road, next time.  We enjoyed a light lunch of chicken and fresh salads at the Family Hotel.  This hotel is full of wall murals and hanging paintings by famous Australian artists.  Our hostess talked about the town, the hotel, the artists and the art in the hotel.  Afterwards, we visited the National Parks Office and the museum in the old court house.

Between Tibouburra and White Cliffs we flew over a lot of fresh water lakes.  The amount of water surprised me, showing that there can be a lot of water lying around from good rains.  There is some talk about trying to harness this water.  I think it will evaporate this time before any scheme is worked out.  The White Cliffs Airport was unattended when we landed.  The pilots rang their contact, who arrived about ten minutes later and soon the planes were refuelled.

I found the flight to Dubbo was tedious.  I felt sleepy, the cabin was warm and stuffy.  The land transformed into large fields and farms as we approached Narromine, west of Dubbo.  I was relieved when we arrived in Dubbo, where I purchased a refreshing passionfruit flavoured yoghurt.  Feeling rejuvenated I enjoyed the flight on to Bankstown.  We flew over lots of farms and then into hilly country with lots of trees.  We arrived at the Blue Mountains as the sun was low in the cloudy sky behind us.  I could pick out Mount Victoria, Blackheath, Katoomba and Leura as we passed to the south-west.  Then we were above white fluffy cloud covering the rest of the mountains.  The sun set behind us as we descended over the mountains and the lighted western Sydney metropolis, landing safely at Bankstown Airport.

We enjoyed our experiencing of seeing so much of Australia at close quarters within four days.  However, we are disinclined to take another such flying holiday.  I confess that flying several legs in a stuffy small plane in a day is not my cup of tea.  I would rather fly in a comfortable plane and pick up a hire car or drive the whole way.  Still, I recommend the experience and it enabled us to see Lake Eyre.  Heron Airlines, the tour arrangers can be found at: http://www.heronairlines.com.au/

Reprise

We boarded the bus to take us home but being us: we were going out to dinner – gluttons for punishment!  We arranged to be dropped at the corner of Missenden Road and King Street, Newtown; said goodbye to our fellow passengers, grabbed our luggage and walked a short distance east along King Street to The Rice Paper Restaurant.  There we enjoyed a family dinner.

We had a wonderful meal, in a well appointed restaurant with great company.  We heartily recommend The Rice Paper Restaurant at 131 King Street, phone (02) 8065 7271 or (02) 9090 2681.  We intend to have regular family dinners there.